HD Measures

Balance Outcome Measures in Huntington's Disease (HD-Balance)

Outcome measures are vital to record disease progression, and also aspects of improvement after engagement in rehabilitation, medication administration (pharma trials), or other such studies. There are a number of physical functioning tests for other neurodegenerative diseases; however, none are specific to Huntington's disease (HD). The purpose of this trial is to administer a battery of balance outcome measures that have been used in neurodegenerative diseases, determine which items are sensitive to change in those with HD, and use them to create a test specifically for HD in the future. This will require in-person administration of common physical therapy balance tests on those with diagnosed HD. Tests will occur on two testing dates to establish test reliability. 

 

Project Leads: Chelsea Macpherson Lori Quinn

Project Members: Maya Campbell

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