MEND-HD

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Digital Measures for Clinical Trial Endpoints in Huntington’s Disease
MEND-HD

We are collaborating on a study evaluating digital measures in Huntington’s disease with colleagues from the University of Rochester, Tel Aviv University, and the University of Massachusetts. In the Fall of 2024, this project received a $2.2 million grant from the FDA. The MEND-HD study is a direct extension of the iWEAR project, validating wearable measures of gait and chorea, and physical activity measures, like heart rate variability and sleep, in people with Huntington’s disease.

The project will also be headed by a patient advisory board, allowing for community collaboration and development of meaningful outcomes that will impact people with HD, using symptom mapping and perceived relevance. The ultimate goal of this study will be to validate these measures for use as clinical trial endpoints.

 

MEND-HD article 

MEND-HD coordinators
Jamie Adams, M.D. (University of Rochester, Center for Health and Technology Associate Director)
Jeff Hausdorff, PhD. (University of Tel Aviv, Center for the Study of Movement and Cognition Director)
Jennifer Mammen, PhD., NP-C. (UMASS Dartmouth Associate Professor)

 

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